Tag Archives: Vertex
Linguistics: "Salami-slicing" Orphan Drugs
Ultra-orphan? It’s a phrase I never heard before, but increasingly, companies are taking it on and finding it a useful way to describe the very smallest patient groups.
“Language is very important, and you have to understand how it affects perception,” says Maria Hardin, vice president of patient services for NORD (National Organization for Rare Diseases). [...]

Hepatitis C: Engaging Patients Online