Tag Archives: patient groups

PCORI Initiatives May Support More Drug Comparisons

The Patient-Centered Outcomes Research Institute (PCORI) is launching new programs that are expected to encourage more analysis of the effectiveness of specific drugs and medical products, while also building infrastructure that could support clinical research on biopharmaceutical products. Since it was established by the 2010 health reform legislation, PCORI has  devoted much of its resources […]
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UN Pact Scuttles Anti-Vaccine Provision

A new international agreement to reduce mercury contamination of air and water was recently adopted by 140 countries, without a proposal that threatened to limit access to vaccines in much of the world. The credit goes to public health authorities and medical experts who challenged a provision blocking production of vaccines with the preservative thimerosal, […]
Posted in Emerging Markets, FDA, Global, healthcare, Legal, Market Access, Patient Communication, Safety | Also tagged , , , , , | 2 Comments

Pharma Still Doesn't Get Patient Groups

A survey of 600 patient groups worldwide conducted in late 2012 revealed that perceptions of the pharmaceutical industry soured in the past year, mainly due to issues of access, pricing, patient safety and transparency. The Corporate Reputation of Pharma in 2012—the Patient Perspective compared the reputations of 29 leading pharma companies around six different indicators. […]
Posted in Europe, Market Access, patient education, pricing, Safety, Strategy | Also tagged , | Leave a comment

Rare Disease Day: Spotlight on Solidarity

Patients, policymakers and pharmaceutical companies are uniting around rare diseases on the rarest of calendar days, presaging a leap forward in health outcomes and business opportunities. Aligning humanistic objectives with business incentives is often the sine qua non of effective community activism. This year’s Rare Disease Day – hosted in the US by the National […]
Posted in Events, FDA, Global, healthcare, leadership, Patient Communication, patient education, social media, Strategy | Also tagged , , , , , , | Leave a comment

The Rising Clout of the Patient

by Sarah Krüg In 2011, the patient’s clout as a stakeholder was firmly established, as reflected in several industry conferences. What’s next for the patient in 2012?
Posted in Events, leadership, Meetings, Patient Communication, patient education, social media, Strategy, Technology | Also tagged , | 1 Comment
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