Tag Archives: patient groups
Pharma Still Doesn't Get Patient Groups
A survey of 600 patient groups worldwide conducted in late 2012 revealed that perceptions of the pharmaceutical industry soured in the past year, mainly due to issues of access, pricing, patient safety and transparency. The Corporate Reputation of Pharma in 2012—the Patient Perspective compared the reputations of 29 leading pharma companies around six different [...]
Posted in Europe, Market Access, Safety, Strategy, patient education, pricing Also tagged patient-centeredness, survey Leave a comment
Rare Disease Day: Spotlight on Solidarity
Patients, policymakers and pharmaceutical companies are uniting around rare diseases on the rarest of calendar days, presaging a leap forward in health outcomes and business opportunities.
Aligning humanistic objectives with business incentives is often the sine qua non of effective community activism. This year’s Rare Disease Day – hosted in the US by the National [...]
Posted in Events, FDA, Global, Patient Communication, Strategy, healthcare, leadership, patient education, social media Also tagged FDA, NIH, NORD, orphan diseases, patient information, Rare Disease Day, rare diseases Leave a comment
The Rising Clout of the Patient
by Sarah Krüg
In 2011, the patient’s clout as a stakeholder was firmly established, as reflected in several industry conferences. What’s next for the patient in 2012?
Posted in Events, Meetings, Patient Communication, Strategy, Technology, leadership, patient education, social media Also tagged e-Patient Connections Conference, patient communication 1 Comment
The Rise of the Patient: Medicine 2.0
by Sarah Krüg
Amidst yellow sandstone arches and California Mission Revival architecture, The Medicine 2.0 +Stanford Summit (otherwise known as the Fourth World Congress on Social Media and Web 2.0 in Health Medicine) set out on a three day journey to challenge its diverse audience to break down silos and expand beyond traditional boundaries. From a [...]
Posted in Meetings, Patient Communication, Strategy, Technology, healthcare, leadership, patient compliance, patient education, social media Also tagged patient information Leave a comment

UN Pact Scuttles Anti-Vaccine Provision