Tag Archives: national organization for rare disorders

Rare Diseases Lead to Unique Legislation

Since 1983, pharma and patent organizations have been working together to influence policy aimed at improving the lives of those with rare diseases. In 1983—with the help of Abbey Meyers and the drive she had to help her son (more on that here)—the Orphan Drug Act was passed to incentivize pharma to step up and […]
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