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Author Archives: Joanna Breitstein
Linguistics: "Salami-slicing" Orphan Drugs
Ultra-orphan? It’s a phrase I never heard before, but increasingly, companies are taking it on and finding it a useful way to describe the very smallest patient groups.
“Language is very important, and you have to understand how it affects perception,” says Maria Hardin, vice president of patient services for NORD (National Organization for Rare Diseases). [...]
Posted in Events Tagged conference, NORD, Orphan Drugs, Pre-Approval, Ultra Orphan, Vertex 1 Comment
Access Programs and Financial Benefit
I’ve always been interested in pre-approval access because it is at the cutting-edge of bringing science and patients together – and it really is about helping those in need. But research presented today in Baltimore, at CBI’s conference on Pre-Approval Access (sponsored by IDIS), shows that there is a financial return for providing these programs [...]
Posted in Events, Strategy Tagged Access Programs, Andree Bates, CBI, Eularis, IDIS, ROI Leave a comment
UBS Life Science Conference Dominated by Wall Street Drama
The UBS meeting’s annual Global Life Sciences Conference this week in Manhattan confronted a unique nexus of Wall Street’s manic behaviors resulting from the nation’s financial crisis and the heavy presence of security on the streets and at the conference hotel as the Sept. 22-25 meeting coincides with nearby UN sessions. These events heightened the [...]
Clinton Tinkers With Malaria Market
A team of reporters and camera crews packed into the headquarters of the Clinton Foundation on West 125th Street this afternoon to hear the details of former President Bill Clinton’s plan to tinker with the market for malaria drugs “in a way that has positive implications for the pharmaceutical companies,” he said.
Posted in Corporate Responsibility Tagged ACT, Africa, AIDS, artemisinin, Bill Clinton, Clinton Foundation, HIV, R&D 4 Comments
Gearing up: HBA Leadership Conference